Expression of Interest - Australasian Kidney Trials Network (AKTN)

Expression of interest to be a member of the Consumer Advisory Board for the Australasian Kidney Trials Network (AKTN)

Are you interested in being involved in research? Here at the AKTN, we want to make sure that clinical trials are designed and run in a way that is meaningful to patients and caregivers and focuses on outcomes that are important to them. The AKTN Consumer Advisory Board will help ensure that trial designs and documents provided to the kidney community are clear and useful, including when the trial results are shared with the kidney care community.

If you’d like to join us as a member of the Board, please either click here to download a fillable PDF form, or continue below to fill in the web form and submit online.

Who are we looking for?
People from Australia and New Zealand, including:
– patients and caregivers with lived experience of chronic kidney disease
– aged 18 years and over
-able to read and write English
-willing to participate and share your experience, opinions and suggestions about trials for the benefit of the kidney community

Please note that Consumer Advisory Board members cannot review trial documents etc that are related to a trial they are already participating in.

What time commitment is involved?
This is very much up to you and will be supported by any guidance you need, which could range from an hour’s introductory meeting to a half- to full-day training workshop when you’re ready to start. This will depend upon the type and level of involvement you choose. Some of our most common consumer involvement activities are below and if you indicate your availability for them, we’ll start to get an idea about what type of involvement you would like:

Please tick all that apply:

A half-day reviewing trial documents and any webpages or mobile applications A one hour meeting every 2-3 months, mostly via Zoom (videoconference software) One face to face meeting per year, held in a capital city

The specific requirements of a trial with which you become involved will be outlined in the Involvement & Communication Plan for that trial, which may change over time. Please let us know if your availability changes over time.

When does it start?
Hayley Candler, the AKTN Consumer Engagement Coordinator, will be in touch within a month of her receiving this completed form. If you are invited to become a Consumer Advisory Board member, there will be some training/information to read through. We’ll contact you when there’s a good fit between you and one of our trials!

Will members be acknowledged or reimbursed for their input?
With permission, members will be acknowledged on the AKTN website and other trial documents. Members are also entitled to reimbursement for reasonable travel costs and time, which will be paid in accordance with Health Consumers Queensland recommendations.

How do I become involved?
Please fill in all the boxes below. If you have any questions, please get in touch with Hayley Candler (Consumer Engagement Coordinator) aktn.cec@uq.edu.au I 0419 614 798

Why are we asking the questions below?
It is important to the Australasian Kidney Trials Network (AKTN) that we capture views and opinions from people of a variety of backgrounds and experiences. The information you provide below will help us ensure we include people from as many different backgrounds as possilbe.

First and Last Name:(required)

Year of Birth:

Postcode:

Phone:

Email:

Preferred contact method:

Phone Email

Why would you like to be involved in kidney disease research?

Gender identification:

Male Female Non-binary / third gender

Race/ethnicity:

White / Caucasian Australian Aboriginal or Torres Strait Islander Indian subcontinent (e.g., India, Pakistan) Asian, other than Indian subcontinent Other (specify)

If 'Other' to above question – please specify here:

Is English your first language? If no, please specify your first language:

What’s the highest level of education you’ve completed?